Hello Beth.

So pleased all went well for you. Sounds like a long day you had but they do keep a good eye on you. First one over
so must be good. I should imagine the steriod will keep you awake having it in such a big dose.

I had a call from RA nurse to say I have been accepted so details have been passed over to admissions so I should
hear now within next 2 weeks. A am off tomorrow for 3 nights to Valencia with my Mike - so lovely really excited.

Let us know in a couple days how you feeling ?

Rose x

Hi Sue

I arrived at hospital 8am because I had to have B cell blood tests done 1st (a mix up in communication from rheumatology, so when I asked they said 'not necessary' but then when I double checked they said it WAS needed!) The staff didn't arrive till 8.20 and I began the pre infusion stuff at 9. Because the infusion had to be interupted, it took longer - so I finished infusion at 3.15 but couldn't leave till 5.15, as it is necessary to have obs for every 30 mins until 2 hours post infusion.
Felt wiped out yesterday and feeling ok today but still quite tired.

Hi Belinda

Feeling ok but still on the tired side. I have had several little areas of inflammation/pain since just before the 1st ritux - I assume this is due to the inflix wearing off and before the ritux becomes effective - if it is going to - which could be 6-12 weeks post 1st infusion - I think. These areas have moved about my body - just like it was before the inflix began to work. You forget just what it was like - when you haven't had to put up with it for a while
Next infusion due Tuesday - hoping to be able to report wonderful results!!!

Beth,

glad you doing ok. Are you working ? It sounds like it wipes you out a bit. Hope your second
infusion goes well.

Sue,
Hope your goes ok. I am due to go on Wednesday for my first infusion - really nervous I
must say. See my GP tomorrow to make sure I should be ok as I have taken my last day of
antibiotics today for bad sinus.

Good luck all. Lets stick together on here

Rose x

Good luck to you too Rose. Hope it all goes smoothly and you feel better on it very soon XX Ailsa

Good luck for tomorrow, Rose - hope it goes well for you.

Kathleen x

good luck for tomorrow Rose,

will be thinking of you.

Suzanne x

Hi Rose

Hope everything goes well for you tomorrow. Will be sending you positive vibes.

Louise

Well - 2nd one done without any problems this time – thankfully. It was also completed more quickly and I was away by 2pm – no need to wait for a couple of hours after either. Still tiring though, but not as much as last time. I am still having little episodes of inflammation/swelling but only to be expected I think.

Rose

How did yours go? – ok I hope – I have been thinking about you
And to answer your question - I am still working - I only do part time and fortunately have only missed 2 weeks off work when I was relatively newly diagnosed. It has been a massive struggle at times but I haven't wanted to loose that independence besides which I would have gone loopy(well even more) being at home all day and not been able to physically do anything.

Do let us know how you got on.

Well done Beth good news.

I will start a new rituxumab under blog heading. . . .. Rose